I have no brain power for “creative” writing tonight, if you can ever call it that. And my computer is not keeping up with my typing either, which is highly frustrating.
I thought you might like to hear about yesterday’s appointment at the Sarah Cannon Research Institute. Brian was able to go with me and we were given good information on how things will work if we choose to enter one of their research studies. It was encouraging that:
a. The oncologist could come up with a list of 5 or 6 studies she thinks may be a good fit for me just off the top of her head. It is always better to hear of options as opposed to “we don’t know what else we can do for you.” I will hear later in the week the one they they suggest I start with. Most all of the studies involve one visit per week to the facility; most are tolerated better than chemotherapy.
b. I really liked all of the folks we spoke with that we’d be in most frequent contact with. All were very kind, compassionate, focused, and optimistic.
c. The facilities are very nice – obviously fairly new; and on my long days there I will get to have a private room.
I was given some additional meds to treat the skin condition, because that has to be resolved before I can start any trial. So man, have I got a LONG list of current medications going now!
Tomorrow is my visit to Vandy.
Thank you for keeping up with me.